As I start this blog it’s actually about 1:00 a.m. on Wednesday morning. Nikki’s blood sugars have taken a huge spike and are off the meter high – thankfully, no ketones and her last reading about 10 minutes ago had her at 468 – way too high but headed in the right direction. I’m trying to stay awake because her next round of pain killers is due in about 20 minutes and I want to retest at that time. Let me just add, in language that is just plain not nice, diabetes sucks.
Rambling in a more positive direction I wanted to take a minute and acknowledge the staff at Children’s Hospital and the superb care Nikki receives there. Everyone from the Child Life Specialist to the receptionist in the parent’s waiting room are so nice that the employees at Disney World could learn a thing or two (and that’s the happiest place on earth with the some of the nicest staff I’ve ever encountered). However, for this visit one particular person went over and above for Nikki, Bryan and myself. Her name is Sigma and she was Nikki’s PACU (recovery unit) nurse for the duration of our stay. She praised a very scared and traumatized Nikki as she had the tube removed from her throat and she continued that praise for every little thing Nikki did – not in a patronizing way, but in a very genuine way. This nurse even offered to go get Bryan and I lunch for goodness sake. One of the nicest things she did was to ask if Nikki could be moved to a private trauma room while she was in the PACU – she felt that since Nikki had to be there longer than most kids, she (and her parents) would be more comfortable in quieter, more private surroudings. She was definitely a direct contributor to Nikki’s willingnes to drink and move toward coming home instead of having to stay over.
One other thing I’d like to mention about the staff in the Day Surgery unit was the fact that they let Bryan and I go all the way into the operating room with Nikki and remain with her until she fell asleep. We were with Nikki when she drifted off and we were there when she opened her eyes; because of the staff’s care and concern about how scary any kind of surgery is for an 11 year old, Nikki never knew that Bryan and I were not with her the entire time. It really reduced the stress for her.
The last moment I’d like to share from Tuesday is how much Nikki wanted her big sister. Amber had spent the day or so before Nik’s surgery telling her how she (Amber) had her tonsils out and that Nikki would be okay. Amber stayed with a friend of ours on Monday night so she could get to school Tuesday morning. The great part of story is that not only was Nikki wanting Amber close-by, but Amber was wanting to be with Nikki just as much. I gave Amber the choice of riding back home with her friend after school, so she could get her stuff and then we would pick her up a little while after that. Amber texted me from school and asked if she could just get her stuff later and come straight home to be with Nikki instead. Yes, I’m biased about my girls, but I sure do like the people that they are. Oh, and when Amber did get home from school, she leaned down by where Nikki was sleeping and told her she was home. Nikki opened her eyes, focused for a second then those two silly, dramatic girls hugged each other for about 5 minutes.
As I finish this blog, it’s about 11:00 a.m. Wednesday. Nikki didn’t have such a great night as far as blood sugars go, but she slept okay. Right now her blood sugar is 316 and believe it or not that’s as low as we’ve gotten it since it started spiking yesterday. She’s still drinking well for me and that is definitely a positive note to end on.