Tuesday, March 31, 2009

My Max

Me and My Max Age 10


I am a relatively new teacher – not in age, just experience LOL – anyway, about 4 years ago I began as an assistant teacher at the elementary school where my daughters’ were attending. Let me say that I love working with kids, I was involved in many community service programs working with children long before I began my work in the school. However, it was at that time that I decided to return to college to obtain a double major in Child Studies/Family Home Certification with a minor in Family Studies. There were 3 reasons for this decision; (1) my own kids, (2) my boss Sara and (3) Max. This blog entry is about sharing my Max story; he does not have T1 but has dealt with a lifetime of hurt in his very young life. His story is inspiring and can uplift anyone dealing with things like diabetes, which can seem overwhelming at times. Max’s story is really mine, rather told from my perspective and deals with my experiences with him. Meet my Max….
Max Age 4 - Home to America

My first day as a Para-educator is etched in my mind permanently and the reason is because of a little blonde hair boy named Max. My job was to assist in the classroom with the kids who are enrolled in the Exceptional Child Program. These kids have a wide ranging variety of battles from the physical to things like ADHD. Max has ADHD, but that was not his biggest battle. Let me take you back to Russia and a 2 year old boy that no one wanted. A 2 year old blue eyed, blonde baby boy abandoned to a Russian Orphanage. I will leave the rest of that part of his story for his mother to share on her new blog From Russia, with Love and ADHD. I will, instead, move forward to when Max was 4-1/2, when he found his true parents who brought him home to America. Max did not speak English and you can just imagine the psychological trauma that he faced before and during his life in the orphanage. So to say that Max was prone to ‘outbursts’ is putting it mildly.

When I first met him, he probably didn’t weigh much more than 40 pounds, but WHEW he could muster the strength of a full grown man. Anyway, when I walked into the room he was focused on tying his shoes – he was in 1st grade. He was in the middle of the floor and the lead teacher wanted him to stop, immediately. Max ignored her. Max ignored me. I have a certification in non-violent restraint so I bent down to help Max up; my plan was to take him aside and quietly talk with him. First day idiocy on my part – at that point Max viewed any physical contact, that was meant to make him do something he didn’t want to do, a direct threat; who could blame him. He only wanted to tie his shoes after all. I wound up picking him up and walking out of the room with him, he was screaming at me, but I honestly couldn’t figure out what he was saying. However, by the time I got across the hall with him, he was calm and ready to go back to class. I was a little stunned at how fast the ‘incident’ was over, then I realized that while I was carrying him he had managed to tie his shoes; I immediately became his biggest fan.

About a week later, also during carpet time, Max decided he wanted to play with items inside his desk instead of joining the class on the carpet. Let me take a minute to say that there were many of us adults not handling this situation in a way that met his needs at that point; that didn’t last long. I bent down in front of him, eye to eye, and told him he had to go to the carpet or we had to leave. He told me NO, to both. He then wrapped those little legs around the legs of his chair and refused to move. So I just picked up the entire chair and carried him out of the room; which brought an unbelievably shocked look to the faces of every single 1st grader and their teacher. Max loved it; he became a fan of Mrs. Turner in that moment. He was laughing so hard he forgot he was mad and the whole incident was forgotten.

Max’s outbursts could be violent and scary at times, the person they scared the most was Max. Toward the end of that school year, almost the last day, he had a particularly bad one. He stayed with me in the resource room for the remainder of the day. Toward the end of that school day I took him outside for some calming sensory time on the preschool playground. We bounced a ball for a while, and then he decided he wanted me to hold his hand while he walked on the edging around the mulched area; finally, he went to the climbing equipment where he wanted to jump so Mrs. Turner could catch him. So this is what we did for quite a while.

At some point I looked at him and said “you’re a pretty cool kid Max”. To which Max replied “you love me?” I said, “Of course I do Max” and he said “cause’ I’m good now, I’m not being mad”. I stopped him, picked him up, put him on the concrete and kneeled down in front of him, again eye to eye. I said “Max I love you all the time, even when you’re really, really mad; I always love you”. He looked at me and said “always”. That was the last outburst Max ever had, to a violent degree, at school. Now I’m not saying it was just because of our talk, but I do believe that was part of it. He knew that he had a grown-up, at school, who was on his side no matter what.

That was 4 years ago and today Max is a daily part of my home life. He is like a cousin to my daughters and a nephew to my husband and I. Max overcame a language barrier, abandonment, fear, anger, insecurity and a whole host of other things that would cripple most adults. He just received an amazing report card and is getting ready to test for the highest degree blue belt. He has spent Easters with us, kept my father company when we installed our pool and has brought genuine joy into the lives of everyone he meets.

His own story is something only his amazing mother can tell. I can only speak from the impact he has had on my life. Max has a little brother now, adopted from the same orphanage in Russia. He still struggles with ADHD, but to the eyes of those who have seen him come so far, he is the epitome of a walking miracle. He is also my inspiration on the days when I feel that diabetes is a giant too big for us to handle.

My Max……he has taught me more than I could have ever taught him.
Polar Express Day - Mrs. Turner and her 'boys', Max on my left


Max and Amber in our pool

Max and his adorable little brother Brayden in Disney World



Monday, March 30, 2009

Blue Tongued Skink



My girls are animal lovers to be sure – but today Nikki confirmed just how much love they have for all creatures. Let me first say that Amber wasn’t in on this because she is sick and was asleep downstairs. Max, who is like my adopted nephew, brought over his new and fantastic pet to show us; she is a Blue Tongued Skink. She is a very interesting little (sort of little) creature that has a bright blue tongue. I wasn’t sure how Nikki would react to her; would there be screaming like when she sees a moth or a snake; or delight like when she sees a hamster, dog, cat, horse, pig, bird, etc. It was like when she sees the latter. She loved the little lady and Max was very proud to be showing her off. Really I have no purpose for blogging this except that my kids never cease to do the opposite of what I think they will do and that is worth mentioning -- in my humble opinion.

Nikki goes to get her wrist x-rayed tomorrow morning and we are hoping to be brace free and NOT need a cast. I’m sending Amber along with Nikki so I can sneak in a second examination on her – I’m thinking bronchitis which is a bummer because it’s Spring Break for them this week.

Blood sugars in the 100’s lately – whooo hooo!

Saturday, March 28, 2009

Three

I just redid my original diabetes video because I was having trouble with the old one. I took the opportunity to update the pictures. Please let us know what you think!


Friday, March 27, 2009

Diabetes Language

Living with diabetes means, among many other things, using words that can seem unusual to some people. For instance, the word Emla is the name of the cream we put on Nikki to numb her pump site before inserting the new one. Some of the words are not that unusual, however they do tend to take on a new meaning when you are living with a chronic disease.


Thursday, March 26, 2009

Deltec Cozmo No Longer Sold


I was alerted to this issue through SUM and I've decided that, inspite of the company's reassurances, I will worry. We JUST got our Cozmo for goodness sake!


Decision Represents First Step in Orderly Exit from the Diabetes Business Over Time


ST. PAUL, Minn.--(BUSINESS WIRE)--Smiths Medical announced today its intent to stop selling the Deltec Cozmo® insulin pump, and manage an orderly, carefully controlled exit from the diabetes business over time.

“The continued health of the thousands of people who use the Deltec Cozmo® insulin pump is our primary concern, and they should be reassured that their pump remains an excellent choice to help them manage their diabetes,” said Srini Seshadri, president of Smiths Medical. “Our customers also should be reassured that Smiths Medical will meet all of its warranty obligations; provide customer and clinical support for the lifetime of the warranty of all pumps; ensure that Deltec Cozmo® insulin pump cartridges and Cleo® and Comfort® infusion sets are available; and make any necessary transitions as simple as possible.”


For people with a Deltec Cozmo® insulin pump, today’s announcement means two important things:


  • When the pump approaches the end of its warranty period, customers should consult with their healthcare provider to choose a pump from another manufacturer.

  • Smiths Medical will work with pump users to transfer purchases of cartridges and infusion sets to one of the many national and/or regional distributors that stock these items. (Anyone who already is familiar with a distributor should feel free to contact that company immediately and start ordering supplies directly.)

NOTE: Pump users outside of the United States may continue to purchase disposable cartridges and infusion sets from their local Smiths Medical distributor, a list of which can be found at http://www.delteccozmoupdate.com/.

For more information, including distributor contact details, U.S. and International pump users and healthcare professionals should visit http://cts.businesswire.com/ct/CT?id=smartlink&url=http%3A%2F%2Fwww.DeltecCozmoUpdate.com&esheet=5925054&lan=en_US&anchor=www.DeltecCozmoUpdate.com&index=2. In the United States, people may also contact the Smiths Medical customer support team at 1-800-826-9703.


Why Smiths Medical Made This Decision Smiths Medical considered many possible options to create a long-term, sustainable diabetes business. However, after reviewing these options, it was decided that the best course of action is to exit the diabetes market.

In addition, as its only direct-to-consumer enterprise, the Diabetes business has little synergy with the rest of Smiths Medical’s businesses. For this reason, Diabetes requires its own extensive sales, marketing, reimbursement, insurance and clinical support infrastructure in the United States, which has resulted in it becoming uneconomical as sales and profits for the business have decreased. Without a strong, profitable Diabetes business in the United States, the world's largest medical market, it would also be impossible to sustain the business internationally.


Finally, dramatic changes have taken place in the diabetes market during the past three years, including:

  • The market has evolved from a familiar hardware-plus-disposables model to an integrated diabetes management model that would require significant ongoing investments in continuous glucose monitoring.

  • Smiths Medical’s shrinking market share has been exacerbated by the aggressive pursuit of market share growth by two large and well-resourced players – Medtronic, which has the largest share of the U.S. insulin-pump therapy market, and J&J.

  • A considerable amount of intellectual property has been established in the diabetes segment, which makes the development of next-generation products very costly, and risky in terms of the potential for future patent disputes.

“Throughout our involvement in the diabetes market, we have chosen always to put care for our customer first, providing excellent clinical support, maintaining the integrity of our warranty and being proactive about fixing issues as they arose,” said Seshadri. “For our efforts, we have been rewarded with a core group of very loyal customers. We thank them and reiterate our commitment to making this transition as easy as possible for them.”


What This Decision Means for Diabetes Employees: The decision to stop selling pumps means that 51 people working in the Diabetes business will be affected immediately, primarily in field sales, marketing and, to a lesser extent, clinical services, customer support and manufacturing. Smiths Medical will retain enough staff to ensure that it meets its commitment to customers for the remaining warranty period on pumps already sold. The company will continue to offer a pump recertification service for existing pumps that may need to be replaced during their warranty period.


About Smiths Medical Smiths Medical is a leading supplier of high-quality medical devices and products for global markets. It designs and manufactures specialist medical devices in three key areas: Safety Devices, Vital Care and Medication Delivery.


Smiths Medical's customers include hospitals, alternate care such as home care, and other healthcare providers worldwide. Smiths Medical is part of the global technology business Smiths Group, a world leader in the practical application of advanced technologies. Smiths is a global technology company listed on the London Stock Exchange. For further information, visit http://www.smiths-medical.com/.


Link to this article: http://www.businesswire.com/portal/site/home/permalink/?ndmViewId=news_view&newsId=20090325005242&newsLang=en


Wednesday, March 25, 2009

I'm A COOL-CAT Mom


I found this great website for parents called Juice Box Jungle (gotta love the name). It has a lot of great videos touching on different parenting quandaries and it has a section called "Truth or Dare" which is where I took this "What Kind Of Mom Are You" quiz. You can also take the quiz trying to guess the kind of mom your friends are. I haven't done that one yet, but you know I will. Anyway, this is what my test results are and at the top of the results on their website is a note saying "I want to take the test again, only this time I'll lie" hummmm - I don't agree with the last sentence on my Cool-Cat description, so maybe I'll take the test again. ALSO, the above avatar is the one that goes with the Cool-Cat mom and I don't know about you, but I just don't think she looks like me at all - what do you think that means? LOL.


You are a complex Mama! You are organized, never run out of milk, and you book birthday parties 3 months ahead. But, you're able to let go: you're not an anal foodie, and you're not a strict disciplinarian. You do your best to get the kids a healthy meal but if pizza pops up three nights in a row, so be it. And if the Lion is the King of the Jungle, then you - Cool Cat that you are - must be Queen. As queens tend to be, you are more suited to expert supervision than down and dirty tussling with the cubs. You know how to involve them in important activities of course, but Mama's got to have her space! But watch out! With your laissez-faire discipline and hands-off play style your kids may think you are less interested in being a part of their play than you actually are. Or not. :)

Tuesday, March 24, 2009

School Walk for Diabetes


Nikki was amazing again today! Today is Diabetes Alert Day and, as I’ve mentioned before, the wonderful (and much loved) Nurse Paula took it upon herself to get Nikki’s class and 3 other classes involved in an ADA School Walk for Diabetes to bring awareness to this disease. Nikki and Paula did a presentation about diabetes this morning; then two 5th grade classes used their gym time to ‘walk for a cure’ – they even raised money for the event. Nikki spoke to the group as a whole before they started walking and then, at the end of the day, her wonderful teacher (who is also much loved) Kim Laughlin allowed the kids to keep asking Nikki questions; they ran out of time this morning. We are truly blessed to have so many wonderful friends and caregivers in our lives.

Let me just take a minute to talk about - and to - Nurse Paula. In my experiences over the last 6 years, I know that many, many families struggle when they send their child to school because of lack of support. I am blessed to be able to say that I don’t have that problem; I (we) have Paula. She goes over and above for Nikki (well, all her students). So thank you Paula for all your efforts in caring for my child, being willing to learn whatever new pump we are using and all the other ‘stuff’ that goes into the daily care of diabetes. You are a treasure and, as Nikki leaves Kenton this year, you will always remain one of the most important parts of her elementary years. Thank you. Are you SURE I can’t take you with us?


Today was a good day.


video

Sunday, March 22, 2009

Nikki's To Do and Not To Do Lists


Saturday, March 21, 2009

Weekend Stuff


Blood sugar numbers have been between 80 and 137 – yeeee haw!!! Today was a special day for our family. My granddaughter turned 1 today, which I can’t believe. We had a wonderful time with all 4 of our girls and our birthday princess. Stacy and Briana are my husband’s daughters from a previous marriage, but since they have been a part of my life since they were 2 and 7 (about 20 years now) I like to claim them as mine as well. Anyway, we had a great time admiring the adorable Princess Emilee. Nikki’s blood sugars were spot on today – which always makes it a promising day and no one fell or incurred any injuries – an all around success.

This coming Tuesday is the American Diabetes, Diabetes Alert Day. Nikki’s class and another couple of classes are sponsoring a School Walk for Diabetes to raise money toward a cure. The kids at school have really gotten behind this cause and are almost as excited as Nikki and her little T1 1st grade buddy; which goes a long way toward raising awareness in the youngest generation.

Late last night Nik came in to tell me a funny story (her words) about when she was checking her blood in class yesterday. She said she was feeling Low so she decided she needed to check. The boy sitting next to her decided that was the perfect time to ask her question after question after question about diabetes. She said he was asking things like “does that hurt”, “do you have to do that every day”. She said “mom, I never mind answering questions; but my blood was low and I couldn’t concentrate on getting my strip in the meter, my finger poked AND answer all his questions and I was getting…..you know {waving her hands around her head}”. So I asked her what she did. She said when he asked “do you LIKE checking your blood, I told him ‘yeah, it’s great let me do yours’; and he left me alone after that”. She was amused at how fast he wanted to get away once he thought she would actually poke his finger; “but,” she said “he quit asking me questions so I could concentrate on my blood”.

I believe that’s all I’ll say about that….well….Go Nikki!
DIABETES FACES: I'm still collecting pictures of people with T1 - I want to do a blog entry that consists entirely of the people this disease affects - a blog in pictures. If you're willing to send me a picture, please e-mail it to sheribby@insightbb.com

Wednesday, March 18, 2009

Mouse is Gimpy




Okay, so this is the way our lives go – Nikki is wonderfully healthy lately; so how does she celebrate? She falls in gym class yesterday and is now in a wrist brace for 2 weeks! No I’m soooo not kidding! She was walking across the gym floor and according to Nikki “my feet just went the other way”; she landed on her wrist.

She didn’t immediately tell anyone that this had happened and by the time we were all aware of it, her wrist had begun to swell. I was teaching in the class next to Nikki’s yesterday, which was both good and bad. Good because I could look at it right away and bad because I couldn’t just take off and run her up to the doctor (Troy you are awesome, but don’t let that give you big head). So it was Dad to the rescue. They x-rayed her arm/wrist and it was too swollen to see if there is a fracture; so Troy put her in a fairly impressive brace for 2 weeks. After the 2 weeks are up, he will re-x-ray and if a fracture shows she will be in a cast for 8 weeks.

She’s in a rather silly mood about the whole thing. She tells everyone she falls a lot because she takes after her Aunt Linda and now, because her thumb is frozen in the ‘up’ position, she walks around giving everyone a ‘thumbs up!’ When I look at her I can’t help the crazy thought “mouse is gimpy” and I think that is only supposed to apply if one is referring to a limp, but still, Mouse is Gimpy. That’s how we roll……

Monday, March 16, 2009

Lydia


I was trying to remember when I first heard about diabetes – before it attacked our family that is. I can actually go all the way back to elementary school in Kentucky (the Stone Age), about 3rd grade I think. I had a friend, who must have been very important at the time – but for some reason I can only remember her first name now – Lydia. Lydia had to eat sugar free snacks, which tasted terrible! I can remember thinking her mom was strange because she would stand and watch us play with this sad little smile on her face. I think Lydia must have moved away because I have no memory of her in 4th grade or beyond.

Isn’t the human brain an enigma? I mean, why can I remember the terrible taste of the sugarless cookies and sugar-free Jello; and the way her mother seemed so sad and strange to me, and yet I can’t remember her last name or when she moved away. I remember that Lydia had shiny black hair and very pale skin; and I remember that she was very thin, very pretty and very nice.

Looking back, the thing that sticks with me above all else is the fact that I now completely understand that look on her mom’s face. She was happy and sad all at the same time as she watched her daughter play; only the parent of a child with a chronic illness can understand that feeling.

I think about Lydia a lot now. I wonder what became of her. I would love to be able to sit down with her today, in our 40+ year old bodies, and share our journeys. I would also like to tell her that I now love red sugar-free jello, but I’m still not a fan of sugarless cookies.

Sunday, March 15, 2009

I'm the Anti-Sleeping Beauty


I’ve come to the conclusion that sleep is something I did when I was younger; I seem to have given it up all together. I thought, last month, that my increasingly bad sleep habits were because Nikki had been sick for so long and we couldn’t seem to get her healthy at all this winter; then I thought it was that issue combined with worrying about her surgery; Then I decided it was both of those combined with the frustration and helplessness of watching her have to be in pain during those recovery weeks. Now she is healthy, blood sugars doing great and I’M STILL NOT SLEEPING, sorry for shouting. So my next diagnosis is to blame it on heredity – I must get it from my mother and grandmother. That being the case, I’ll have to stick with ‘sleep is something I did when I was younger’ and embrace the rather ginourmous bags under my eyes. I'm thinking this makes me the anti-Sleeping Beauty {never falls asleep and the beauty thing is OUT} :-D.

We are starting to get ready for walk season – that is Step Out and Walk for a Cure; looking forward to both of them! I received some sample No Sugar shirts yesterday and they look great! Nikki wants to use the new No Sugar blog logo on the t-shirt which means that we’ll have to have a his and hers set because I just don’t think I can talk my husband into a t-shirt with purple flowers and bows; no matter how much he adores his mouse (hee hee).

Nik’s last blood sugar reading, about 20 minutes ago, was 118 – whooooo hoooo – Love those 100 numbers!

Thursday, March 12, 2009

Getting Mad or Being Seuss


We've had quite the night; however, instead of allowing my head to explode and shatter into a thousand pieces I decided to pretend to be Dr. Seuss - I'm thinking most of you will figure out what happend.


New Purple Meter


One Meter, two meter, three meter, four
Where are the test strips? There are no more!
I have a meter in pink, I have one in blue
Wait! in blue I have way more than two
Of course there’s the black one, the white one and green
But alone they’re no good; you should’ve heard my mom scream!
She ran here and there all over the house
She scared all the dogs and my little pet mouse
She jumped on the phone; then she jumped in the truck
I was riding beside her, quite sure I was stuck
My mom dropped me off, sped away and sped back
A new purple meter! If I smile, she’ll attack!
S Turner

Wednesday, March 11, 2009

Mrs. Belk's 3rd Grade Class








As parents, we all have those moments when we simply want to shout, as loud as we can, that’s my kid! Today was like that for me. Nikki gave her first ‘diabetes talk’ to her own audience. She was invited to be the guest speaker for Mrs. Belk’s 3rd grade class (yes I had the wrong teacher AND the wrong grade initially). Let me take this moment to tell Mrs. Belk’s class that they were a great audience; very attentive, respectful and asked a ton of great questions – THANK YOU!
Nikki was so excited to be giving her first ‘talk’. This is something that I had nothing to do with; her, Mrs. Laughlin (Nikki’s teacher) and Mrs. Belk set it up and planned it – I only showed up to take pictures (because we all know how I feel about pictures). Last night, Nikki typed out her speech, gathered the things she wanted to show and talk to the class about and made sure one of her No Sugar Needed t-shirts was clean for today.

It is so great to see your baby girl grow into a self-assured, happy young lady. Nikki took questions for about 15 or 20 minutes and had the answer to 99% of them – I only spoke if she indicated she wanted me to answer; when I say indicated she would say “ask my mom” so I figured it was okay if talked at that point. She’s giving another ‘talk’ on March 24, Diabetes Alert Day, at her school. Her and the wonderful Nurse Paula are heading up a School Walk for Diabetes on that day, Nikki is acting as the school ambassador; the kids are raising money to donate and everyone seems really excited about it. Again, I had nothing to do with that one either – and that makes me so very proud of Nikki and thankful for a school nurse as caring and as involved as Paula.

I also want to thank Wendy Belk for inviting Nikki and giving her the opportunity to tell her story and educate her peers on this disease; it was such a great moment of ownership for her. The teachers and staff have been such an amazing support system since Nikki began there in Kindergarten; I simply don’t have the words to describe the positive impact you have all had on our family.

I have to end with a special nod to our friends Kacey and Jill. I thought you would want to know that Nikki talked about Kacey today when she telling the kids about our blog – and she wore the bracelet you sent her.


God is Good!

Tuesday, March 10, 2009

Site Changes and Cameras and Speeches, oh my





Don't you just love the title of this entry? (hee hee) I’m loving this weather! It’s been so pretty the last couple of days, wonder how long it will last. We are just home from various dances classes, musical rehearsals and dog walking adventures; now I’m waiting on the Emla to take affect so I can put Nikki’s new site in. We’ve been changing Cozmo every three days since her surgery 2+ weeks ago and that's been working really well. Her numbers have been pretty fabu (knock on wood).

I snuck into Nikki’s semi-private dance class this afternoon to snap some pictures. I have this fabulous new camera and my continuous picture taking is worse than ever! The girls don’t even notice when I’m taking pictures anymore, which actually makes for really good pictures a lot of the time.

Tomorrow afternoon Nikki is talking to one of the other 5th grade classes about living with diabetes. I’m hoping to sneak in and ….. TAKE PICTURES ….. or maybe even get a little video; however, I don’t want to make Nikki aware of my presence and mess up her speech. I asked if it would bother her if I come (as long as I sit toward the back) and took some pics/video for No Sugar; she was all for it – as long as I asked Mrs. Collins if it’s okay, we must ALWAYS follow the rules. (Lori, I think this is my request) :-D.

Well Cozmo is beeping rather insistently at me because I started the loading process but stopped to blog – so I’m off to do a site change. It's a good thing Cozmo has a better brain than me most of the time.

Monday, March 9, 2009

No Sugar's Facelift




I was looking at Nikki this morning, just before she left for school, and my first thought was “man you look so healthy today”. That is such a good feeling! She’s had great blood sugars lately, pretty much in the 100’s consistently which is also a good feeling (especially for Nikki!).


I mentioned in an entry this past weekend that our blog is getting a face lift – here it is! Doesn’t it look beautiful! Thanks to The Cutest Blog on the Block for their design and hard work – we even have our official ‘mouse mascot’ now! I just love it.

That’s about it for now – thankfully, it’s been an uneventful day!


God is Good <3

Saturday, March 7, 2009

Spring - I Can Feel It!


It’s been a great weekend so far. Nikki is pretty much feeling back to her old self and that is such a relief. My oldest daughter, Amber, had her 8th grade formal last night, she looked beautiful and yes I’m biased. With the weather changing to Spring (let’s hope it stays that way) I’m feeling a definite need to do some Spring cleaning and organizing, but just haven’t developed the DRIVE to get up and actually do it.

I’m also excited because our blog is going to be getting a face lift, which includes our own custom design. Can’t wait to see the finished product.

Another wonderful happening is that Nikki’s school nurse is organizing a School Walk for Diabetes and has asked Nikki to be the School Ambassador. Paula (nurse) has done this all on her own and I have no real word to express my gratitude for her care and concern for Nikki Mouse. I'm still trying to talk her into graduating to middle school with Nikki next year. There is one other student at school that has diabetes and he is in first grade – I know this will be a great chance for them to really help in their own fight for a cure.

Lastly, one of the 5th grade teachers is doing a unit (and I’m not exactly sure what the precise unit is about – Nikki gave very vague information – she was just so excited) that has to do with the Jonas Brothers, Nick Jonas and diabetes. She asked Nikki if she would be willing to come to her class and talk about diabetes and answer questions. She is thrilled!

In May we are walking with ADA Step Out for A Cure. My writer friend, who is also a diabetes educator in Kentucky, invited us to walk with the event in her town and we are very happy to be participating! Don’t forget to check out her book CookingUp Fun for Kids With Diabetes – it’s an awesome book to have in your diabetes stash.
DON'T FORGET: If you are a T1, are related to a T1 or if you're friends with a T1 and have permission to e-mail their picture, I am wanting to do a blog dedicated to the Faces of Type 1 - my e-mail is sheribby@insightbb.com

Monday, March 2, 2009

Our Mouse Tale


Let me be the first to say that I have no clue as to what is considered normal behavior in a hamster. Now you might be asking yourself “what does that have to do with diabetes”, well…nothing…but it does have something to do with Nikki Mouse. I blogged recently that she has a new ‘baby’ – a Siberian Dwarf Hamster that she named Miss Mouse.

Let me take one of my standard ‘asides’ and tell you where the name Nikki Mouse came from. When I was pregnant with Nikki, Bryan and I took Amber to Disney World for a week. Somewhere during that week I found myself humming “N-I-K-K-I-M-O-U-SE, NIKKI MOUSE – AMBER LEE! NIKKI MOUSE – AMBER LEE; MOMMY’S SWEET LITTLE BABY GIRLS” (to the tune of the Mickey Mouse song). Okay so I’m weird, but that is something I’ve never denied. Anyway, the name stuck and eventually we adopted a little mouse mascot for No Sugar Needed; which is why – when Nikki saw this adorable little hamster she immediately named her Miss Mouse.

That is the end of my ‘aside’ –I’ll now revert back to my original topic of not really knowing much about hamster behavior; but I do know a lot about my children’s behavior and they are total animal lovers. Nikki fell completely in love with Miss Mouse, who came to us just before Nikki’s surgery; which resulted in Nikki being with the little cutie around the clock for the last couple of weeks.{ Another brief ‘aside’: Miss Mouse runs in her mouse wheel for HOURS – MIDDLE OF THE NIGHT HOURS!} This morning I went into Nikki’s room and peeked in Miss Mouse’s house and the crazy little hamster RAN to where I was looking in and peered back up at me; and I swear she was looking for Nikki! This tiny critter is attached to Nikki – Nikki regularly gets her out of her house and she runs around Nik’s bedroom, she climbs on Nikki and I’m not entirely sure that is considered normal hamster behavior; but in Miss Mouse’s defense she is a Turner now and that exempts any requirements regarding acting ‘normal’.

So that’s my Mouse Tale for today.